Tell Congress To Give ME/CFS Research a Fighting Chance!
Did you know that Congress oversees a $11.9 billion medical research budget independent from the NIH?
It's called the Congressionally Directed Medical Research Programs (CDMRP) and right now ME/CFS is not an eligible research topic area. But we can change that and open up a whole new area of research funding for ME/CFS.
Please use this form and ask your member of Congress to request ME/CFS be added as an eligible research topic area.
Note: Due to the requirements of the Congressional messaging systems, the "Prefix" item must be completed in order to submit. The "Send My Message" button will appear below the pictures of your elected officials after the form has been fully completed and the "Show Me My Officials" button clicked.
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I am writing to you regarding the upcoming FY 19 budget and the Peer Reviewed Medical Research Program (PRMRP) which provides resources for biomedical research “enhancing the health and well-being of military Service members, Veterans, retirees, and their family members.” Chronic Fatigue Syndrome, also known as Myalgic Encephalomyelitis or ME/CFS, was an eligible topic area in 2011 but was ultimately removed despite a clinical presentation that is identical to Gulf War Illness and an estimated impact on 15,000 military servicemen and women. As you may know, ME/CFS is a complex disease with no known cause, treatment, diagnostic tool, or cure. The CDC estimates that up to 2.5 million Americans suffer from ME/CFS, and patients have lower quality of life scores than those with lung cancer, stroke, and rheumatoid arthritis. Studies show that ME/CFS costs the U.S. economy up to $24 billion per year. There are risk factors unique to military service that put our service members at higher risk for developing ME/CFS, such as living in extreme climates and environments, extreme physical exertion, exposure to foreign viruses, toxic chemicals and neurotoxins. Given the significant health, safety and economic impacts of ME/CFS on military servicemen and women, and the unique risks that military servicemen and women are exposed to, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) should be made an eligible research topic in the Peer- Reviewed Medical Research Program (PRMRP) targeted for biomedical research funding through the U.S. Department of Defense in Fiscal Year 2019. Please submit a written request to the Appropriations Subcommittee on Defense to request the inclusion of ME/CFS in this program.
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