ME/CFS Action for Florida - Feb 12th Deadline!
Florida Congressmen Gus Bilirakis and Darren Soto are leading the whole Florida delegation in Congress to sign a letter to National Institutes of Health (NIH) Director, Dr. Francis Collins, urging more urgent investment for research on ME/CFS.
We need Florida patients, caregivers, and loved ones to take action!
The Florida delegation is ready to lead after years of constituents, like you, raising their voices and because of advocacy and research results from Dr. Nancy Klimas and Nova Southeastern University. This action can set the precedent to have other states step up too.
The deadline for co-sponsorship is
5:00pm ET on Wednesday February 12
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Dear Senators and member of Congress - I write as your constituent and as a Floridian who has been devastated by the disease ME/CFS. I ask you to sign a bi-partisan Florida delegation letter to NIH Director Dr. Francis Collins to respectfully urge NIH to accelerate its ME/CFS research program. Florida Congressmen Soto and Bilirakis are leading this bipartisan delegation letter. ME/CFS has no FDA-approved treatment, affects roughly 2.5 million Americans and 160,000 Floridians, and persists for years or a lifetime, leaving many patients housebound or bedbound. I have been profoundly affect by this little understood disease. We believe NIH can make discoveries with a stronger program and that there is room to improve on its $15 million annual funding of ME/CFS research. The estimated cost to Florida's economy is between $1 - $1.5 billion in medical expenses, lost tax revenue and lost productivity. Florida houses one of the country's premier research centers for ME/CFS, and its sibling affliction Gulf War Illness, at Nova Southeastern University and is poised to be a leader in future research programs in ME/CFS. Please agree to sign onto this letter supporting ME/CFS biomedical research. Our families urgently need evidence-based medical care. You can convey your support to Shayne Woods (Shayne.Woods@mail.house.gov) in Rep. Bilirakis' office at x5-5755. The deadline is COB Feb 12.
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